Advocacy — World Parkinson Congress Blog

Posts in Advocacy

National Plan to End Parkinson’s Act Signed into U.S. Law with Historic Global Significance

National Plan to End Parkinson’s Act Signed into U.S. Law with Historic Global Significance

by The Michael J. Fox Foundation

AdvocacyThe Michael J. Fox FoundationJuly 29, 2024Nine, Parkinson's, The Michael J. Fox FoundationComment

From Canada to Barcelona: Bringing the Canadian Open Parkinson Network (C-OPN) to the 6th World Parkinson Congress

From Canada to Barcelona: Bringing the Canadian Open Parkinson Network (C-OPN) to the 6th World Parkinson Congress

by Marisa Cressatti, PhD

Advocacy, Clinical ScienceMarisa Cressatti, PhDMay 23, 2024parkinsons, Nine, Atypical Parkinsonism, WPC2023, researchComment

PD GENEration: Creating the Largest PD Genetics Registry Study in North America

PD GENEration: Creating the Largest PD Genetics Registry Study in North America

by Kamalini Ghosh Galvelis, MS

AdvocacyKamalini Ghosh Galvelis, MSOctober 25, 2023eight, Genetics, Parkinson's Comment

What’s In Your Network?

What’s In Your Network?

by Sabela Avión Martínez, MA

Advocacy, Living with Parkinson'sSabela Avión Martínez, MANovember 10, 2022Parkinson's, YOPD, Women, World Parkinson Congress, patient engagement, Awareness, research, Gender, SevenComment

Becoming a Parkinson’s Advocate

Becoming a Parkinson’s Advocate

by Fulvio Capitanio

AdvocacyFulvio CapitanioAugust 24, 2022Seven, Parkinson's, AdvocacyComment

Creating a Self-Care Practice with a Toolbox, Flexibility, and Self-Love

Creating a Self-Care Practice with a Toolbox, Flexibility, and Self-Love

by Angela Robb

Living with Parkinson's, AdvocacyAngela RobbSeptember 27, 2021Parkinson's, Care Partners, self care, Advocacy, six Comments

Widening the Arms of the PD Community

Widening the Arms of the PD Community

by Karen Raphael, PhD

Advocacy, Living with Parkinson'sKaren Raphael, Ph.DNovember 4, 2019four, parkinsons, advocacy Comment

A is for Apathy: What I wish I had been told about Parkinson’s disease

A is for Apathy: What I wish I had been told about Parkinson’s disease

by Omotola Thomas, MSc

Advocacy, Living with Parkinson'sOmotola Thomas, MScOctober 25, 2019four Comments

Pearls in Kyoto

Pearls in Kyoto

by Lissa Kapust, LICSW, Elaine Book, MSW & Mayura Ueda, MSW

AdvocacyLissa Kapust, LICSWAugust 27, 2019Care Partners, Parkinson's, fourComment

Change the Message

Change the Message

By Joe Lacy

AdvocacyJoe LacyJune 4, 2019advocacy, fourComment

What WPC means to me - the patient’s view

What WPC means to me - the patient’s view

By Richard Windle, M.Sc

AdvocacyRichard WindleNovember 19, 2018Advocacy, World Parkinson Congress, threeComment

Bridging the Gap: Insights & Strategies from Doctors who are Patients

Bridging the Gap: Insights & Strategies from Doctors who are Patients

By Pamela Quinn

AdvocacyPamela QuinnOctober 1, 2018three, World Parkinson CongressComment

Teamwork and Collaboration - World Parkinson Congress' Impact and Influence

Teamwork and Collaboration - World Parkinson Congress' Impact and Influence

by Helen Matthews

AdvocacyHelen MatthewsSeptember 13, 2018three, Tom Isaacs, Cure Parkinson's TrustComment

Creating Community

Creating Community

by Sarah Jones, MPA, MS

AdvocacySarah Jones MPA, MSAugust 30, 2018three, community buildingComment

Planet Patient vs Planet Researcher

Planet Patient vs Planet Researcher

by Mariette Robijn, MSc

AdvocacyMariette Robijn, MScMay 21, 2018threeComment

Balancing Safety and Urgency

Balancing Safety and Urgency

by Soania Mathur, MD

AdvocacySoania Mathur, MDFebruary 12, 2018clinical trials, two Comment

If You Can Dream It, You Can Do It!

If You Can Dream It, You Can Do It!

by Elisabeth Ildal

AdvocacyElisabeth IldalDecember 27, 2017twoComment

Patient Advocates Respond to the PD Pandemic

Patient Advocates Respond to the PD Pandemic

by Sara Riggare MSc, PhD candidate & Jonathan A. Stamford BSc, PhD, DSc

AdvocacySara Riggare MSc, PhDDecember 19, 2017two Comment

Look, Listen and Learn: The Importance of Patients(ce)

Look, Listen and Learn: The Importance of Patients(ce)

by Daniel Weintraub, MD

AdvocacyDaniel Weintraub, MDDecember 14, 2017Impulse Control, non-motor symptoms, twoComment

The Power of Addition

The Power of Addition

by Dave Iverson

AdvocacyDave IversonNovember 20, 2017clinical trials, diversity, advicates, Inclusion, twoComment